5 hours agoShareSaveChloe HaywardShareSaveBBC handoutFailing to properly diagnose and treat people with bipolar disorder is wasting billions of pounds a year in the UK, according to new data shared exclusively with the BBC. Experts say many of the estimated million people living with this condition are “ghosts in the system”, whose lives are being torn apart by poorly managed extreme suicidal lows or manic, erratic highs.Emma was diagnosed with bipolar disorder in her early 30s, after experiencing a mental health crisis.When she was 32 weeks pregnant, her grandmother died unexpectedly, sending her into a “deep low”. “I felt awful, but the perinatal team wouldn’t take me on,” she says. “They said my symptoms weren’t that serious.” When Emma gave birth, the extreme lows of her pregnancy were replaced by an unexpected high. She felt amazing in the days after her baby was born – but she didn’t sleep and her behaviour became increasingly erratic.A few weeks later, her mood flipped again. When her baby was three weeks old, Emma took an overdose.It took a week in hospital for her liver function to return. But even after that, she was in and out of hospital for a year before finally being diagnosed with bipolar disorder, and medicated correctly.”If I had the correct care, and been listened to during my pregnancy or even earlier, I could have avoided taking that overdose – 100%,” she says.It wasn’t Emma’s first experience of poor mental health – she’d spent her teens seeing doctors and receiving different antidepressants. No one had ever suggested she might have bipolar disorder.Experts have told the BBC how most people living with bipolar disorder in the UK are “undertreated, undiagnosed and left to try and survive in a system that has failed them”.The majority who, like Emma, are eventually diagnosed with bipolar disorder, are incorrectly prescribed antidepressants initially, which makes their symptoms worse rather than better. Experts also say there is a lack of continuity of care from GPs through to psychiatrists.Their warning comes as data exclusively shared with the BBC suggests the cost of the condition in the UK is now an estimated £9.6bn a year. That equates to more than £300 per taxpayer.This breakdown includes NHS costs, such as GP services, psychiatrist appointments and visits to A&E and hospital admissions. It also includes economic costs, such as lost days at work and the need for family and friends to take time off to provide informal care. But it does not include welfare payments for those out of work, or costs for police services dealing with people in crisis.Highly treatable”This nearly £10bn figure is actually quite conservative,” says Prof Judit Simon, from the Medical University of Vienna, who worked with the BBC to generate the number.”If this is a government that really wants to try and bring down the welfare bill, then bipolar disorder should be its absolute priority, the target disorder to actually move the dial.”The data suggests up to 372,000 people with bipolar disorder are currently out of work and claiming benefits in the UK.For a treatable disease, this number could be slashed if the correct care was on offer, say experts.Prof Guy Goodwin, emeritus professor of psychiatry at University of Oxford, says: “If you want to cut the costs of a disease, you need to reduce hospital admissions and emergency care. If you don’t focus on cutting hospital admissions then you waste money.”According to the Royal College of Psychiatrists (RCP), bipolar disorder is a manageable condition.Dr Trudi Seneviratne, registrar at the RCP and a commissioner on the Bipolar Commission, says it is “completely treatable” with a combination of medication, talking therapies and lifestyle factors.”But there are many, many people who are suffering in silence with lower levels of symptoms because there isn’t a good clinical care pathway for them in the UK.”She says if care for bipolar disorder was fit for purpose, it would cut “the cost to society” as well as reducing “the human suffering this disease unnecessarily causes”.It is this sense of waste – with people who could be leading a good life but aren’t – that angers experts most, who say it is a neglected diagnosis.Prof Allan Young, from Imperial College, says: “Bipolar is common, complex and costly – but it is so often unrecognised.”People know it is there but somehow people are just not being cared for correctly.”This lack of correct care is what Rosie says resulted in her being arrested at Stansted Airport for jumping the security barriers during a manic episode in her early 20s.”I was utterly delusional,” she says. Following her arrest, Rosie was taken to A&E and locked in a room. She waited there for more than 12 hours while a bed at a specialist mental health unit was found.Like Emma, Rosie had been dealing with mental health issues since childhood, but it was only after being in crisis that her condition was recognised. This particular period of psychotic mania had been triggered by a relationship breakdown.She was sectioned and hospitalised for three months, after which she finally began finding a combination of medic …
