Daneka Etchells began experiencing unusually heavy periods and severe pain at age 12, but repeated doctor visits yielded only a prescription for birth control without addressing her underlying condition. Over the following years, her symptoms worsened significantly, eventually resulting in permanent physical disability. Medical professionals repeatedly dismissed her concerns during what she describes as 17 years of medical gaslighting—instances where healthcare providers invalidate patient health worries, causing patients to doubt their own pain and experiences.
Etchells was eventually diagnosed with endometriosis, a painful condition affecting one in 10 women. The extensive growth had developed across nerves and ligaments connected to her legs, causing lasting damage. Although surgical intervention eventually occurred, the delay in diagnosis meant permanent consequences. During what should have been a career highlight performing at Shakespeare’s Globe, Etchells found herself unable to continue working due to severe pain, fatigue, and mobility issues. She ultimately underwent private excision surgery after saving money through various means, including fundraising, and now uses mobility aids despite the surgical intervention.
Etchells’ experience mirrors that of Tom Wentworth, playwright and producer of a new stage adaptation of The Secret Garden. The reimagined production depicts Colin, a main character, advocating for himself and finally being heard by medical professionals—a reflection of both creators’ experiences navigating healthcare systems. Wentworth, who describes himself as queer and disabled, has also faced instances where doctors attributed his symptoms to his cerebral palsy rather than conducting proper diagnostic evaluations.
Healthwatch England reports that experiences of medical dismissal occur frequently, particularly among young people, women, and those identifying as LGBTQ. According to William Pett, interim director of policy, such occurrences are common with conditions including ADHD and endometriosis. The organisation has called for NHS complaints system reforms to provide faster, more satisfactory patient responses. Government health officials have acknowledged medical gaslighting as a real barrier, particularly for those with endometriosis, and have introduced reforms including Martha’s Rule, which allows patients to request rapid condition reviews when deteriorating.
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