Endometriosis, a condition where tissue similar to the uterine lining grows outside the womb, is affecting women’s ability to maintain employment and is often diagnosed years after symptoms begin. According to available estimates, one in six women with endometriosis leave the workplace due to the condition. Several women profiled in a recent inquiry into workplace impacts described years of misdiagnosis, with doctors attributing their symptoms to other conditions before eventually identifying endometriosis.
Carla Cressy, a former model, experienced severe pain beginning at age 13 when her menstrual periods started, but was not diagnosed with endometriosis until age 25. During that interval, she underwent an appendix removal based on a mistaken diagnosis of acute appendicitis and was hospitalized multiple times for what was labeled chronic constipation. The delayed diagnosis led to the development of frozen pelvis disease, a severe complication where internal tissues become adhered together. She ultimately required bladder reconstruction surgery and a complete hysterectomy, leaving her unable to carry a pregnancy biologically.
Other women described similar experiences of medical dismissal and workplace struggles. One woman reported being prescribed gut health yoghurt by doctors for pelvic pain at age 10, only to experience debilitating pain once menstruation began. She has applied for disability benefits three times without success and continues working as a sales administrator despite ongoing pain. Another woman has had endometriosis spread to her lungs and awaits multiple surgical procedures while managing additional conditions including adenomyosis and pelvic congestion syndrome.
Psychotherapist Dr. Sula Windgassen noted that women with endometriosis are frequently told their symptoms are psychological rather than physical. She is researching medical gaslighting and emphasized that delayed diagnosis and repeated medical dismissal can have measurable biological effects on inflammation and stress hormone patterns, potentially worsening health outcomes. Currently, the UK has no legislation ensuring fair treatment for workers with menstrual health conditions who need time off.
Several women profiled have established charities to support others. A recent study found that 84% of women feel unheard by healthcare professionals regarding their conditions. An NHS spokesperson stated that medical professionals should follow National Institute for Health and Care Excellence guidelines for diagnosis and that specialist women’s health hubs are available in most areas.
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