An All-Party Parliamentary Group on Endometriosis inquiry, supported by Endometriosis UK, has documented substantial economic hardship experienced by women with the condition. The report revealed that nearly half of affected women lost income because of their symptoms, and more than a quarter left employment entirely. Additionally, 39% of respondents reported experiencing financial hardship as a direct result of the condition, while 40% declined career opportunities due to insufficient workplace support.
Endometriosis affects approximately one in 10 women and can cause severe pain, fatigue, heavy bleeding, and fertility problems. Despite its prevalence, diagnosis often takes years, creating extended periods during which women struggle with undiagnosed symptoms while working. Among those featured in the inquiry, one woman experienced a seven-year diagnostic delay, while another waited 13 years for identification of her condition. The diagnostic delays add to financial strain, as women manage symptoms without medical support or workplace accommodations.
The financial burden extends beyond lost wages. One woman paid approximately £6,000 for private surgery due to lengthy NHS waiting times, and spent about £8,000 on a third round of IVF following two NHS-funded attempts. Such out-of-pocket expenses compound the difficulties faced by women already experiencing income loss and employment instability.
Workplace support remains limited, with fewer than half of employees with endometriosis receiving workplace adjustments. The inquiry found that 94% of women believed employers lacked adequate understanding of the condition. A Department of Health and Social Care spokesperson acknowledged that endometriosis can have a “devastating impact” on women’s lives and indicated the government’s renewed Women’s Health Strategy identifies it as a priority condition, noting that findings underscore the need for improved support in both healthcare and workplace settings.
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