A new generation of disability rights activists carry on Judy Heumann’s legacy

by | Nov 15, 2026 | Health

A new generation of disability rights activists carry on Judy Heumann's legacy

Being Heumann, a film by Oscar-winning director Sian Heder, tells the story of Judy Heumann, a Brooklyn-born activist known as the mother of the disability rights movement. The documentary, which premiered on November 13, 2026, traces Heumann’s pivotal role in securing civil rights protections for people with disabilities in the United States.

Heumann gained prominence through her leadership in the spring of 1977, when disability rights activists occupied the former Department of Health, Education and Welfare building in San Francisco for nearly a month in what is widely considered the longest sit-in of a federal building in U.S. history. Led by Heumann and Kitty Cone, the protesters, representing various disability communities, demanded enforcement rules for Section 504 of the Rehabilitation Act of 1973, a provision that had promised fair employment and non-discrimination protections but lacked implementing regulations. Their efforts resulted in the passage of rules that made these protections enforceable, leading to accessibility requirements for federally funded institutions including schools, libraries, and public buildings.

According to Joe Shapiro, a former NPR correspondent and friend of Heumann until her death in 2023, the activist believed that “disability only becomes a tragedy for me when society fails to provide the things we need to lead our lives.” This framing of disability rights as fundamental civil rights remained central to the movement and influenced subsequent generations of activists who came of age under the Americans with Disabilities Act, passed in 1990.

The film’s release has resonated with younger disability activists who view themselves as continuing Heumann’s work. Members of Judy’s League, an organization founded to resist what they characterize as efforts to roll back Section 504 protections, watched the film together and reflected on its relevance to contemporary challenges. A federal judge’s recent decision to remove references to “integration” from Section 504 regulations has particularly concerned activists, as this language represented gains from Heumann’s era. Younger activists express both concern about threats to existing protections and determination to maintain momentum in advancing disability rights.

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